Griffin’s CRPS therapies keep us extremely busy and I would like to dedicate this page to everyone that has supported us over the past couple of years! Thank you for helping us through this disease and for keeping us in your prayers and thoughts. Thank you for your visits and donations and for being there when I needed to talk and for following along with me on my journey on my Facebook page and through my website. I want each of you to know you much you mean to me!
Dan Jobin, Our Guardian Angel from Calgary, CA without your generosity, we wouldn’t have survived Boston!
The Semora Ruritan Club for their wonderful soup dinner fundraiser. Thank you for bringing the community together and for supporting Griffin.
Pamela Tomlinson, Author, Kids Defense Team, CRPS Survivor for always being there for me and believing in me, allowing me community service hours for my school work through video creation and for your unselfish nature in paying it forward!
Autumn Stevens, CRPS Survivor for invaluable information and support and the wonderful phone chats. Her articles include: Living With CRPS: A Life in Constant Pain and Living With Chronic Pain: How A Lack Of Awareness Can Lead To Discrimination
Brittany Fields, CRPS Survivor for setting me in the right direction for proper treatment
Robin & Zac Gilbreath & Family, BCH, CRPS Survivor, for your motivating words and wonderful meals!
Karen & Jessica Plott, BCH, CRPS Survivor for continuing to lead the way
Bambi & Brittany Surface, BCH, CRPS Survivor for your great spirit through so many trials
Rhonda & Ash Tweedy & Family, BCH, CRPS Survivor for always being there!
Mary Claire & Ed Clark & Family, BCH, CRPS Survivor for your natural motivation
Sandy & Bill Day, Greensboro, NC for your generosity and support
Diane Taylor, PFSH for your unselfish generosity and encouraging words
P.U.M.P. for your generosity and prayers
Linda Gibson Yancey, PFSH for your generosity and prayers
Billie Jo Northrup Greene, PFSH for your generosity and prayers and support
Charles & Judy Baker, CUMC for your consistent motivation and prayers and support
Zach Carver & Family, Roxboro, NC for being a great friend and for supporting me
Randy Newsome, PFSH for your generosity and support
Barbara Winstead, Roxboro, NC for your concern and generosity
Ana Wiscovitch Kinsey, PFSH for your generosity and support
Howard Black, Advocacy Author for CRPS for your research contributions!
Kim & Carla Boone, Robbins, NC for your generosity and support and for always staying in touch no matter where your job takes you!
CUMC Love Offering, Roxboro, NC for coming to our rescue so many times
CUMC Forever Young Class, CUMC for your generosity and prayers and support
Mitzie Bohne, PFSH for your unselfish generosity and support
Sam Newton, PCLA for your generosity, support and concern and allowing me to work for medical funding expenses
Susan & Logan Abdo, RCS for being a wonderful friend and keeping in touch
Charles & Frances Sasser, PFSH for your generosity and prayers
Ana W Kinsey, PFSH for your generosity and support
Kay & Dan Winstead, CUMC for being a great friend and for your prayers and support
Ed & Mary Louise Scarborough, Hyco for making me earn my keep and for your wonderful “natural remedies”.
Alice Swanson, PFSH for your generosity and support
Susan Bulla Whitaker, PFSH for your generosity and support
Tina Burton, Indianapolis, OK for being a wonderful long-distance friend
Sherri Emmons, Author, Indianapolis, OK for being a wonderful long-distance friend
Felicia Dutton, PFSH for your generosity and support
Lori Wright, PFSH for your generosity and support
Trent & Debbie Oliver, Troop 239 for your support and helping me clear out the stuff around here
Triangle Orthopedic Family, Durham & Roxboro, NC for your patience and support and friendship
Laura Rogers, AVCO for always keeping in touch
The Luther Family for your generosity
Deb McKague & Fred, Danville, VA for your continued encouragement
Linda & Stan Glod, Author, St Lukes Cathedral, Langley, VA for always being there
Patrick Walters, Triangle Variety Radio, for your unselfish willingness to promote CRPS Awareness and motivating me to write
Paula Montenegro, Greensboro, NC for your encouraging and supportive words and prayers
Randy Terry, Hyco for your concern and for taking care of my pets
Pastor Tom & Jan Holtzclaw, CUMC for your wonderful cards and encouraging words
Pastor Karl & Jeanie Neuschaefer, CUMC for always being there and helping us through the toughest times
The Henderson Family, Hyco for your generosity and concern
Jeanie Hicks & Family, RBC for motivating me with your encouraging words and texts when we were so far from home
Jeff & Reba Bulla, CUMC for your prayers and support
Keith O’Briant, Our Guardian Angel, Roxboro, NC for always being there for us
Jennifer Steinmetz, Stroudsburg, PA for being such a great friend
Joel Rose & Family, CUMC for your help in our time of need
Joyce & Frank Horne, PCLA for your support and prayers
Judy LaRue, Hyco for your support and generosity
Kathy & Randy Young, Hyco for your friendship and generosity
Tracy Smith & Family, Greensboro, NC for being a great friend
Kelly Craft, RCS for being there in my darkest time
Marianne DelRusso, CRPS Survivor for your advice
Donna Gabell, PFSH for your generosity and support
Tricia Davis & Family, Pack 239
Beth Stultz, RCS for encouraging me to keep my daily journal
Sandy & Dick Hatch, CUMC for your wonderful friendship and encouraging words and support
Lara Shecter, CRPS Mom, Pain Free Kids, for encouragement
Dr. Navil Sethna, BCH PPRC Waltham for coming through for me, keeping your promise and saving my life!
Nancy Cotterman, CRPS Survivor for your invaluable research and contact
Kelly Sengson & Family, Marietta, GA for being a real friend – wish we lived closer! and for providing a comfortable bed during our travels
Ernie Carver, CUMC for your loving support and encouragement
Shannon & Bob Zippay, CUMC for consistently being there for me and for your loving support and encouraging words
Mary Hartsell, Durham, NC for being there for me during my weakest moment and saving my life!
Candy Clayton & Family for being the best b&b guests ever!
Rob Maggard, Durham, NC for letting me help create your goal of computer games for other kids to learn from
James Carver & Cole’s Pharmacy Family for always being there and for your generosity and advice
Chris Mastalski, SLJH for all of the medical wake up calls
Sue Pinkham, TCAPP for your wonderful advice
The Isackson Family, RCS for being a great friend
Tommy Middleton, Hyco for always being there for us in our time of need and your unselfish generosity and humbleness and for taking care of our pets
Stephen Saunders & Chiropractic Family, Roxboro, NC for always being there like a family and the great advice!
Dr Murray, BCH Sports Medicine for keeping me walking and encouraging me to wait for surgery to keep the CRPS from spreading
Jeffrey Noblett & Denistry Family, Roxboro, NC for being like a family to me and for your genuine concern and research
Dr Poorv Shah, Lakewood Pediatrics Family, Durham, NC for taking me in and for all your concern and coordination with my medical team
Edward Brown & Family, Salisbury, NC for your support and love
Emily Skonier & Family, Hyco for the wonderful friendship and for always being there in good times and bad
James Day, Days for Music and Safety, for your unselfish generosity and concern and distraction toys!
Julie Reynolds, Hyco for encouragement and prayers
Angela Dunkley, Woodland Music Teacher for keeping me in your prayers
Pastor Adam Self for keeping up with my CRPS adventure and for your prayers and support
Pam Long, Long Memorial Music Teacher, UMC Preschool for my memory book and keeping in touch and for your prayers and friendship
Becky & Donald Wilson, Woodland & CUMC for being the best teacher ever and keeping me in your prayers
Carolyn & Lyman Johnson, CUMC for your words and cards of encouragement and keeping me in your prayers
Trey Mayberry & Family, Roxboro, NC for being a great friend!
Lennita Graves, CUMC for being a great friend and keeping me in your prayers
Karan Christian, PFSH for all of your support and concern and always checking in on my updates
The Salmon Family, Lillington, NC for your wonderful cooking and unending love and prayers
The Huggins Family, Apex, NC for your daily calls and words of encouragement
Ivy Lindsay & Family, Seagrove, NC for always encouraging me and sharing my updates and I love our visits
Concord United Methodist Church Family for being the best supportive family ever
Michael Columba & Crescent Suites Family, Waltham, MA for your hospitality and making me feel at home in Waltham!
Randall Johnson, CUMC for your generosity and many good nights of sleep
Pastor Nate Hester & Family, CUMC, Youth Pastor for including me and making me feel like family
Pat Morris & Family, CUMC for your consistent support and prayers
The Harris Family, Roxboro, NC for your prayers and support
Debbie Truex, WA, USA for your friendship and words of encouragement
Debi Baker & Family, Lillington, NC for your encouragement and prayers
The Weaver Family, Hyco for being a wonderful neighbor – wish you were here more!
Dennis Jones & Family, PCLA for prayers and offers of help
Dennis Jones & PCLA Family, Leasburg, NC for your continued friendship
The Krueger Family, Wyalusing, PA for always being there even when you are so far away
The Shearon Family, Pack 239 you’ll always be family
Richard Morreale, CUMC for your wonderful listening skills!
Peter Christian, PFSH for checking in on us, for your prayers and encouragement
The Folley Family, Hyco for always being there and for the wonderful friendship
Frank Boone, Spring Lake, NC the best grandpa ever!
Greyson Morris & Family, RCS for including me and for your friendship
Renee Dawson, ECU for always being there in spirit and just a phone call away
Djana Jackson, ECU for being a great friend and encouraging me
The Crumptons, CUMC for your support, advice, concern and prayers
Renee Morton, CUMC for your advice, concern and prayers
Ann Wrenn, RCS for your generosity and support
Andrew Hall, Roxboro, NC for your friendship forever
Boston Children’s Hospital Waltham PPRC, MA, USA for giving me my life back and helping me walk again!
The Legun Family, CUMC for teaching me healthier eating habits and being there for advice and distractions and the wonderful garden access
Bob Toll & Family, AVCO for your support, concern, advice and a comfortable bed during our travels
The Winn Family, CA, USA for your love and following up with my progress
Livia & Robby Jones, Hyco for prayers and distractions
Kim Slaughter & Family, Hyco for your wonderful heart, support and help when we really needed it!
Lynn Foushee, Skin City Body Art for your distractions and friendship – never a dull moment!
Marla Zappia & Family, Hyco for Reike and your wonderful friendship
Melissa Miller & Family, PFSH for being a wonderful person and so thoughtful and caring
Mary Miller, OR, USA for always being there and providing sound advice
Barbara Walters, RCS for your concern and love and for keeping up with my progress
Lowell Rakes, RCS for your support and encouragement and being one of my favorite teachers
Mike Czysz, RCS for your distractions, encouragement and for sharing your love of science
Marshall & Vivian Painter, Hyco for your support in the most desperate time of need
Rachel Hines, Roxboro, NC for your prayers and encouragement and friendship
Edith Owen, Roxboro, NC for your generosity and prayers
Gary Weathersbee, SC, for always being there and for your daily humor that keeps me distracted
Gary Williams, GA, for your concern and encouragement and life-time friendship
Troy Knight, Good Mortgage Charlotte, NC for your encouragement and jokes
Grey Pentacost, The Courier-Times for believing in me and for writing and sharing my story
Hyco Lake Marina Family for your concern and prayers
The Forehand Family, Raleigh, NC for your concern and encouragement
The Winstead Family, CUMC for your prayers and support
Melissa Lowery, RCS for being you and your considerate nature (I’ll never forget you renting me a wheelchair my day out)
Anonymous Supporters for your humbleness, generosity and prayers
And anyone that I may have missed! You are all in my thoughts daily.
*CRPS can follow an injury as minor as a sprain, a tick or dog bite, giving blood, immobilization after a surgery, even after a heart attack or stroke and the pain is not in proportion with the type of injury that has incurred. This disease has been around since the civil war, but we still have no cure. Some veterans describe the pain as intense and hot – long after the wounds have healed.
“I can do all things through Christ who strengthens me.” Philippians 4:13
CRPSKidz is dedicated to helping kids with CRPS by a commitment to share my adventure with CRPS. I hope to make others more aware of the pain associated with this disease and to be a source for other kids.