CRPS Prayer Warriors and Supporters

Griffin’s CRPS therapies keep us extremely busy and I would like to dedicate this page to everyone that has supported us over the past couple of years!  Thank you for helping us through this disease and for keeping us in your prayers and thoughts.  Thank you for your visits and donations and for being there when I needed to talk and for following along with me on my journey on my Facebook page and through my website.  I want each of you to know you much you mean to me!

Dan Jobin, Our Guardian Angel from Calgary, CA without your generosity, we wouldn’t have survived Boston!

The Semora Ruritan Club for their wonderful soup dinner fundraiser.  Thank you for bringing the community together and for supporting Griffin.

Pamela Tomlinson, Author, Kids Defense Team, CRPS Survivor for always  being there for me and believing in me, allowing me community service hours for my school work through video creation and for your unselfish nature in paying it forward!

Autumn Stevens, CRPS Survivor for invaluable information and support and the wonderful phone chats.  Her articles include: Living With CRPS: A Life in Constant Pain and  Living With Chronic Pain: How A Lack Of Awareness Can Lead To Discrimination

Brittany Fields, CRPS Survivor for setting me in the right direction for proper treatment

Robin & Zac Gilbreath & Family, BCH, CRPS Survivor, for your motivating words and wonderful meals!

Karen & Jessica Plott, BCH, CRPS Survivor for continuing to lead the way

Bambi & Brittany Surface, BCH, CRPS Survivor for your great spirit through so many trials

Rhonda & Ash Tweedy & Family, BCH, CRPS Survivor for always being there!

Mary Claire & Ed Clark & Family, BCH, CRPS Survivor for your natural motivation

Sandy & Bill Day, Greensboro, NC for your generosity and support

Diane Taylor, PFSH for your unselfish generosity and encouraging words

P.U.M.P. for your generosity and prayers

Linda Gibson Yancey, PFSH for your generosity and prayers

Billie Jo Northrup Greene, PFSH for your generosity and prayers and support

Charles & Judy Baker, CUMC for your consistent motivation and prayers and support

Zach Carver & Family, Roxboro, NC for being a great friend and for supporting me

Randy Newsome, PFSH for your generosity and support

Barbara Winstead, Roxboro, NC for your concern and generosity

Ana Wiscovitch Kinsey, PFSH for your generosity and support

Howard Black, Advocacy Author for CRPS for your research contributions!

Kim & Carla Boone, Robbins, NC for your generosity and support and for always staying in touch no matter where your job takes you!

CUMC Love Offering, Roxboro, NC for coming to our rescue so many times

CUMC Forever Young Class, CUMC for your generosity and prayers and support

Mitzie Bohne, PFSH for your unselfish generosity and support

Sam Newton, PCLA for your generosity, support and concern and allowing me to work for medical funding expenses

Susan & Logan Abdo, RCS for being a wonderful friend and keeping in touch

Charles & Frances Sasser, PFSH for your generosity and prayers

Ana W Kinsey, PFSH for your generosity and support

Kay & Dan Winstead, CUMC for being a great friend and for your prayers and support

Ed & Mary Louise Scarborough, Hyco for making me earn my keep and for your wonderful “natural remedies”.

Alice Swanson, PFSH for your generosity and support

Susan Bulla Whitaker, PFSH for your generosity and support

Tina Burton, Indianapolis, OK for being a wonderful long-distance friend

Sherri Emmons, Author, Indianapolis, OK for being a wonderful long-distance friend

Felicia Dutton, PFSH for your generosity and support

Lori Wright, PFSH for your generosity and support

Trent & Debbie Oliver, Troop 239 for your support and helping me clear out the stuff around here

Triangle Orthopedic Family, Durham & Roxboro, NC for your patience and support and friendship

Laura Rogers, AVCO for always keeping in touch

The Luther Family for your generosity

Deb McKague & Fred, Danville, VA for your continued encouragement

Linda & Stan Glod, Author, St Lukes Cathedral, Langley, VA for always being there

Patrick Walters, Triangle Variety Radio, for your unselfish willingness to promote CRPS Awareness and motivating me to write

Paula Montenegro, Greensboro, NC for your encouraging and supportive words and prayers

Randy Terry, Hyco for your concern and for taking care of my pets

Pastor Tom & Jan Holtzclaw, CUMC for your wonderful cards and encouraging words

Pastor Karl & Jeanie Neuschaefer, CUMC for always being there and helping us through the toughest times

The Henderson Family, Hyco for your generosity and concern

Jeanie Hicks & Family, RBC for motivating me with your encouraging words and texts when we were so far from home

Jeff & Reba Bulla, CUMC for your prayers and support

Keith O’Briant, Our Guardian Angel, Roxboro, NC for always being there for us

Jennifer Steinmetz, Stroudsburg, PA for being such a great friend

Joel Rose & Family, CUMC for your help in our time of need

Joyce & Frank Horne, PCLA for your support and prayers

Judy LaRue, Hyco for your support and generosity

Kathy & Randy Young, Hyco for your friendship and generosity

Tracy Smith & Family, Greensboro, NC for being a great friend

Kelly Craft, RCS for being there in my darkest time

Marianne DelRusso, CRPS Survivor for your advice

Donna Gabell, PFSH for your generosity and support

Tricia Davis & Family, Pack 239

Beth Stultz, RCS for encouraging me to keep my daily journal

Sandy & Dick Hatch, CUMC for your wonderful friendship and encouraging words and support

Lara Shecter, CRPS Mom, Pain Free Kids, for encouragement

Dr. Navil Sethna, BCH PPRC Waltham for coming through for me, keeping your promise and saving my life!

Nancy Cotterman, CRPS Survivor for your invaluable research and contact

Kelly Sengson & Family, Marietta, GA for being a real friend – wish we lived closer! and for providing a comfortable bed during our travels

Ernie Carver, CUMC for your loving support and encouragement

Shannon & Bob Zippay, CUMC for consistently being there for me and for your loving support and encouraging words

Mary Hartsell, Durham, NC for being there for me during my weakest moment and saving my life!

Candy Clayton & Family for being the best b&b guests ever!

Rob Maggard, Durham, NC for letting me help create your goal of computer games for other kids to learn from

James Carver & Cole’s Pharmacy Family for always being there and for your generosity and advice

Chris Mastalski, SLJH for all of the medical wake up calls

Sue Pinkham, TCAPP for your wonderful advice

The Isackson Family, RCS for being a great friend

Tommy Middleton, Hyco for always being there for us in our time of need and your unselfish generosity and humbleness and for taking care of our pets

Stephen Saunders & Chiropractic Family, Roxboro, NC for always being there like a family and the great advice!

Dr Murray, BCH Sports Medicine for keeping me walking and encouraging me to wait for surgery to keep the CRPS from spreading

Jeffrey Noblett & Denistry Family, Roxboro, NC for being like a family to me and for your genuine concern and research

Dr Poorv Shah, Lakewood Pediatrics Family, Durham, NC for taking me in and for all your concern and coordination with my medical team

Edward Brown & Family, Salisbury, NC for your support and love

Emily Skonier & Family, Hyco for the wonderful friendship and for always being there in good times and bad

James Day, Days for Music and Safety, for your unselfish generosity and concern and distraction toys!

Julie Reynolds, Hyco for encouragement and prayers

Angela Dunkley, Woodland Music Teacher for keeping me in your prayers

Pastor Adam Self for keeping up with my CRPS adventure and for your prayers and support

Pam Long, Long Memorial Music Teacher, UMC Preschool for my memory book and keeping in touch and for your prayers and friendship

Becky & Donald Wilson, Woodland & CUMC for being the best teacher ever and keeping me in your prayers

Carolyn & Lyman Johnson, CUMC for your words and cards of encouragement and keeping me in your prayers

Trey Mayberry & Family, Roxboro, NC for being a great friend!

Lennita Graves, CUMC for being a great friend and keeping me in your prayers

Karan Christian, PFSH for all of your support and concern and always checking in on my updates

The Salmon Family, Lillington, NC for your wonderful cooking and unending love and prayers

The Huggins Family, Apex, NC for your daily calls and words of encouragement

Ivy Lindsay & Family, Seagrove, NC for always encouraging me and sharing my updates and I love our visits

Concord United Methodist Church Family for being the best supportive family ever

Michael Columba & Crescent Suites Family, Waltham, MA for your hospitality and making me feel at home in Waltham!

Randall Johnson, CUMC for your generosity and many good nights of sleep

Pastor Nate Hester & Family, CUMC, Youth Pastor for including me and making me feel like family

Pat Morris & Family, CUMC for your consistent support and prayers

The Harris Family, Roxboro, NC for your prayers and support

Debbie Truex, WA, USA for your friendship and words of encouragement

Debi Baker & Family, Lillington, NC for your encouragement and prayers

The Weaver Family, Hyco for being a wonderful neighbor – wish you were here more!

Dennis Jones & Family, PCLA for prayers and offers of help

Dennis Jones & PCLA Family, Leasburg, NC for your continued friendship

The Krueger Family, Wyalusing, PA for always being there even when you are so far away

The Shearon Family, Pack 239 you’ll always be family

Richard Morreale, CUMC for your wonderful listening skills!

Peter Christian, PFSH for checking in on us, for your prayers and encouragement

The Folley Family, Hyco for always being there and for the wonderful friendship

Frank Boone, Spring Lake, NC the best grandpa ever!

Greyson Morris & Family, RCS for including me and for your friendship

Renee Dawson, ECU for always being there in spirit and just a phone call away

Djana Jackson, ECU for being a great friend and encouraging me

The Crumptons, CUMC for your support, advice, concern and prayers

Renee Morton, CUMC for your advice, concern and prayers

Ann Wrenn, RCS for your generosity and support

Andrew Hall, Roxboro, NC for your friendship forever

Boston Children’s Hospital Waltham PPRC, MA, USA for giving me my life back and helping me walk again!

The Legun Family, CUMC for teaching me healthier eating habits and being there for advice and distractions and the wonderful garden access

Bob Toll & Family, AVCO for your support, concern, advice and a comfortable bed during our travels

The Winn Family, CA, USA for your love and following up with my progress

Livia & Robby Jones, Hyco for prayers and distractions

Kim Slaughter & Family, Hyco for your wonderful heart, support and help when we really needed it!

Lynn Foushee, Skin City Body Art for your distractions and friendship – never a dull moment!

Marla Zappia & Family, Hyco for Reike and your wonderful friendship

Melissa Miller & Family, PFSH for being a wonderful person and so thoughtful and caring

Mary Miller, OR, USA for always being there and providing sound advice

Barbara Walters, RCS for your concern and love and for keeping up with my progress

Lowell Rakes, RCS for your support and encouragement and being one of my favorite teachers

Mike Czysz, RCS for your distractions, encouragement and for sharing your love of science

Marshall & Vivian Painter, Hyco for your support in the most desperate time of need

Rachel Hines, Roxboro, NC for your prayers and encouragement and friendship

Edith Owen, Roxboro, NC for your generosity and prayers

Gary Weathersbee, SC, for always being there and for your daily humor that keeps me distracted

Gary Williams, GA, for your concern and encouragement and life-time friendship

Troy Knight, Good Mortgage Charlotte, NC for your encouragement and jokes

Grey Pentacost, The Courier-Times for believing in me and for writing and sharing my story

Hyco Lake Marina Family for your concern and prayers

The Forehand Family, Raleigh, NC for your concern and encouragement

The Winstead Family, CUMC for your prayers and support

Melissa Lowery, RCS for being you and your considerate nature (I’ll never forget you renting me a wheelchair my day out)

Anonymous Supporters for your humbleness, generosity and prayers

And anyone that I may have missed!  You are all in my thoughts daily.

*CRPS can follow an injury as minor as a sprain, a tick or dog bite, giving blood, immobilization after a surgery, even after a heart attack or stroke and the pain is not in proportion with the type of injury that has incurred. This disease has been around since the civil war, but we still have no cure. Some veterans describe the pain as intense and hot – long after the wounds have healed.

http://tinyurl.com/crpsyoutube

“I can do all things through Christ who strengthens me.” Philippians 4:13

CRPSKidz is dedicated to helping kids with CRPS by a commitment to share my adventure with CRPS. I hope to make others more aware of the pain associated with this disease and to be a source for other kids.

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